NATIONAL THALASSAEMIA DAY 2022
“Wear your heart on your sleeve for thalassaemia campaign”
This year UKTS will be launching a new campaign “wearing your heart on your sleeve for thalassaemia”. This campaign is open to members of the public and is dedicated to supporting and raising awareness of thalassemia. The campaign would also offer the opportunity to continue raising much needed funds to provide care and treatment for those living with this chronic condition and to further research into the cause of the condition.
To give you some background information on thalassemia and why your support is so important:
Thalassaemia is the name for a group of inherited conditions that affect a substance in the blood called haemoglobin. People with thalassaemia produce either no or too little haemoglobin, which is used by red blood cells to carry oxygen around the body. Sadly, thalassemia is passed from parents to children through mutated haemoglobin genes and is most prevalent in Mediterranean cultures along with Southeast Asian and African-American ancestry.
The United Kingdom Thalassaemia Society has been in existence for 44 years and supports people affected by the condition. Patients with the major form of the condition require lifelong blood transfusions along with other medical treatment. The charity offers support, advice, counselling and provides information on blood screening. Awareness events and conferences are organised for patients and health professionals to share information and updates on the latest treatment options. Without support from our local communities and businesses within them it would not be possible to offer and arrange these events or campaigns which continue to provide much needed support. This is where your help could make a difference.
Please feel free to contact the team at UKTS for further details – [email protected] or 02088820011